Guest Editors

Guest Editors

We are indebted to the distinguished personalities below for accepting our invitation to act as Guest Editors

Dr. Mrs. Nnena Felicia Agubata

Why should we knowingly embark on marriages with potential to create physical discomfort?

Dr. Nnena Felicia Agubata, President, Association of professional Women Engineers of Nigeria (APWEN)

As a Pastor, I have been involved with both the spiritual and emotional dimension of sickle cell management. Folks with sickle cell deserve our love, care and very special attention.

Ituah Olajide Ighodalo, Senior Pastor, Trinity House, Victoria Island, Lagos, Nigeria
Beverley Francis-Gibson, SCDAA

My focus is more research and funding for SCD and the imperative of SCT awareness.

Beverley Francis-Gibson, President/CEO, Sickle Cell Disease Association of America, Inc

My wife and I have put our passion and energy into ending the ravages of sickle cell disease by championing a campaign to find a cure for sickle cell, The Ryan Clark’s Cure League.

Steve Ryan Clarke, National Football League player, Pittsburgh Steelers Football Club, Pittsburgh, USA

Many may have heard of sickle cell, but very few know what it really entails to live with it.Sickle Cell awareness should proceed from primary school.

Juliet Lami Usoroh, Principal Partner in the Law Firm of Umaru-Usoroh Co., Jos, Nigeria and Co-ordinator, Value for Life Initiative, a Sickle cell Support Group

We need lots of awareness campaigns to educate our youths about making informed marital choices. Families raising members with Sickle Cell Disorder also need ongoing counseling …

Taiwo Mopelola Adisa is District Chairman, Inner Wheel International District 911 Nigeria
Dr. Kirsty Duncan

Prior to being elected MP, I promised that I would do whatever I could to help those living with Sickle Cell.

Dr. Kirsty Duncan, former Member of Parliament in Canada

We need to establish a fund that caters to the needs of individuals with SCD, care-givers and experts working on management and cure.

Dr. Tunji Olugbodi, Executive Vice Chairman/CEO, Verdant Zeal, Lagos, Nigeria

If everyone could set aside 1% of their budget to advance a sickle cell cause, a lot can be achieved.

Dr. Michael Neba, Co-Founder, Fr John-Kolkman Sickle Cell Foundation, Cameroun

I was filled with such gene-phoba that I started the catechism of genotype verification before marriage.

Dr. Modele Joyce Osunkiyesi, Permanent Secretary, Ministry of Health, Lagos State, Nigeria

There is no time I admit a sickle cell patient and not feel pained by their condition when in crises.

Dr. Kolawole Owoka, MD/CEO, United Healthcare International Ltd HMO and Chairman, Health and Managed Care Association of Nigeria (HMCAN)

Sickle Cell Disorders are completely avoidable through counselling and advocacy.

Pharm Akintayo FPSN, former President, Pharmaceutical Society of Nigeria (PSN)

I came to an understanding of the word ‘Sickle Cell’ when I was 13 years old.

Adebola Benjamin, Sickle Cell Support, Abuja

The school community was clueless about my friend’s unusual health condition.

Baba-Jallah Epega, Chairman, emc3, an events and brand marketing company

Singles and intending couples with sickle cell trait should not take chances. with SCD.

Akinola Idowu Adewunmi, biomedical scientist and Managing Director, PathLab Support, Liverpool, UK

My daughter is a testimony to the fact that SCD is very much amenable to management.

Bashorun Akintola, Nigeria’s former Minister of State for Finance, former Ambassador to Hungary and former Chairman, Island Club, Lagos

My journey with SCD began at the age of 11.

Hon. Justice Timi, High Court Judge in the Delta State Judiciary, Nigeria

We must come together and advocate for this disease if we are going to stamp out the stigma and galvanize interest in Sickle Cell Anaemia.

Pamela Lonzer, Chicago, Illinois, USA

I lived with Sickle Cell Anaemia for 26 years until 2008 when I had a Bone Marrow Transplant. The Transplant was 98% successful …

Habibah Haruna Sanusi, co-founder, Samira Sanusi Sickle Cell Foundation (

When I first heard the word ‘Sickle Cell’, my response was, ‘Sickle What?’ You see my family is White. I am Italian, my husband is Irish. Our blonde haired, blue-eyed daughter was diagnosed with Sickle Cell shortly after birth! – Lisa Rose, Executive Director, HOPE for SCD,

Dr. Benjamin Chavis Jr

The NNPA has entered into a public awareness campaign partnership with Pfizer on SCD. There is not a more propitious time than now to be engaged and active in the global campaign to conquer this disease.

Dr. Benjamin Chavis, Jr, President/CEO, National Newspaper Publishers Association (NNPA), Washington DC, USA (

As a child, I was called a ‘sickler’ because I was often ill, but I did not have sickle cell anaemia. Being called a sickler hurt …

Ufuoma Emerhor-Ashogbon, CEO, Fair Life Africa Foundation
Dr. Funmi Adewara

As a carrier of the sickle cell trait (AS), I found out about the implication of SCD in my early childhood and understood that if I married someone with the trait or the disease, I have a high chance of having offspring who will either be carriers or sufferers.

Dr. Funmi Adewara, Founder/CEO, Mobihealth, UK
Howard Woolley

My late wife’s journey with SCD spurred me into advocacy … I hope to witness a universal and affordable cure for sickle cell.

Howard Woolley, New York, USA

I verified my genotype before marriage because, after having a sister with sickle cell anaemia, I just needed to know!

Mrs. Nike Aremu, Co-Founder, Femi Pinto Sickle Cell Fund

Serving the needs of people with SCD is not only a mission but a passion …

Teresa S. McCurry, CEO, MCS Fund, USA
Jaya Ramteke

There was no awareness and education for sickle cell and its testing when I got married …

Jaya Ramteke, Acting President, Sickle Cell Society of India, Nagpur
Esther Onolememen

I have lived most of my life in Ireland blazing a trail for sickle cell awareness in Europe

Esther Onolememen, Founder, Sickle Cell Society, Ireland (SCSI)

Society … should make a point to raise the sickle cell flag sky high and support organizations and institutions working on both awareness and research.

Nike Aremu – cofounder, Femi Pinto Sickle Cell Fund, Georgia, USA

My sister with sickle cell anaemia is responsible for the National Sickle Cell Disease Awareness project for the Top Ladies of Distinction Inc.

Tony Reed, cofounder/Executive Director, National Black Marathoners Association, USA