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SPECIAL EDITION

Alhaja Asiata Aduke
Onikoyi-Laguda - 90,
princess of the Onikoyi
Ruling House in Lagos,
Nigeria, celebrates 90th
birthday - the amazing
story of her life with
Sickle Cell.
Fellow 'warriors', Ernestine
Diamond, 88, Birney
Smith, 86, Judy Gray
Johnson, 72, Wale Fanu,
65, Darryl Alladice, 61 and
others prove that who will
survive, will survive.
Jan-March 2016
sickle cell news april-june 2016
Father, Daughter, Log
135 years of life with
SCD!
• The challenges of
transitioning from
paediatric to adult care.
• World Sickle Cell Day –
reports from around the
globe
• Hadiza Buhari: My
Passion For SCD sparked
by relatives with the
disease
• Shortage of Transplant
Organs: Scientists grow
human organs in Pigs!
• In Memoriam:
‘Matriarch of Sickle Cell’,
Vernice Joyner-Hopkins
(1920-1994)
April-June 2016
pre-implantation genetic diagnosis
1. Choosing your baby's
genotype
with
Pre-implantation Genetic
Diagnosis (PIGD
)
2.
Interview with
Professor Oladapo
Adenrele Ashiru (
OFR),
pioneer of IVF, PIGD in
Nigeria
3. FGN revives
Niprisan
with 'social production''
for Nigerians only
4.
'SCD will never get me
kissing the dust again!' -
Olufemi Daniel
5. Book Review
The
Morpher
1.  M O N E Y: The Financial Toll of
SCD  … by the time a survivor
reaches 45 years of age, millions from
insurance or out of pocket would have
been spent.... How corruption
shortens life in Africa. Families
pushed to the brink of poverty by
repeated illness
2. Olusegun Obasanjo: several of his
siblings and none of his half-brothers
and sisters survived infancy. Yoruba
culture said it was abiku’. We now
know it was SCD
3. Ambassador (Chief) Yomi
Akintola, Bashorun of Ogbomoso:
‘My Daughter’s SCD proved
amenable to management’
4. Pastor Dickson Ibekwe, Chairman,
Dabma Sickle Cell Foundation: ‘It’s
high time NIGERIA DECLARED A
STATE OF EMERGENCY ON
SCD!’
5. INTERVIEW: Arafa Salim Said,
President/CEO, Sickle Cell Patients’
Community of Tanzania Sickle Cell,
on pregnancy and motherhood
6. Trado-Medical Practitioner pledged
$27000 to rid child of SCD crises for
12 months!
July-Sept  2016
pregnancy in sickle cell disease
PREGNANCY IN SCD

• 'Except there is a cure for SCD, no more
pregnancies for me!' - says Oluwayemisi
Oladejo, after losing 10 babies to miscarriages
and stillbirths

• I was on Hydroxyurea before and during
pregnancy and even after delivering and
breastfeeding my babies ! - Shifneez Shakir


•Samira Sanusi: a whole new life after Bone
Marrow Transplant

•Book Review: James Griffiths III breaks
own silence on living with SCD in gripping
memoir  

• On eve of leaving office, President Barak
Obama plunks $$billions into SCD research
hydroxyurea in sickle cell disease management
      HYDROXYUREA

14-year-old with avascular necrosis (AVN)
recovers speedily
Children forget Sickle Cell pain
Hospitalization down to few or NONE in years
6TH African SCD Symposium endorses
Hydroxyurea for Africa.

DIARY: (Nigeria!) An incredible tale of
well-educated folks, scientists, VIPs seeking
cures  for SCD at the hands of alternative
medical practitioners!

CORPORATE SOCIAL RESPONSIBILITY:
Sujimoto Construction wades into crises of
ignorance
Jan-March  2017
Oct-Dec  2016
Jan-March 2016
ISSN 2141-1093
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